My charity wants to use this, but we have a lot of data already. Can we import it?

Yes! We can help you with this, and can import your data for you. We have an easy-to-use API and upload system, but we can also help process your data to get it ready for the platform. Please get in touch with us on the contact page.

When will it launch?

The app is scheduled for full release mid/late 2023, with a closed beta throughout summer 2023. If you want to sign up for updates or to try it in beta, send us an email on the contact page.

Can I try it before paying for it?

Yes, of course - there is a free tier for up to 20 patients, for you to try out the app and see if it works for you. If you need more than 20 patients, you can upgrade to a paid tier at any time.

Can I share my data with clinicians or other professionals?

Yes! There is an API built in to cohorts.io. You will need to generate an API key for a user, and that user will then be able to make calls freely to the data we have available. We currently only offer the essentials to be queried, and keep certain types of data protected. You can check the API documentation for more information.

Can I use this for my clinic/organisation/patient advocacy group/medical charity?

Yes! cohorts.io is designed to be flexible and to work for a wide range of organisations, with a variety of additional features including forums and messaging. If you have any questions about how it might work for you, please get in touch with us on the contact page. You can also sign up on the free tier to see if it works for you.

I am a carer/patient. Can I sign up for my own personal use?

If you are part of a patient advocacy group or collective charity, we recommend you contact them to see if they are interested in using cohorts.io for their members. cohorts.io works best when it collects the data from a patient group, or cohort. If you are not part of a group, you can use the app as a starting place to set up your own patient advocacy group. If you have any questions, please get in touch with us on the contact page.

I am thinking of setting up a patient advocacy group/medical charity. Can I use this?

Yes! cohorts.io is a great place to start, although we also recommend talking to our partners who can give you some more general advice about the logistics of setting up a charity. If you have any questions, please get in touch with us on the contact page.

I am a researcher. Can I access your data?

Yes! If you have permission from your organisation, we have an API built in to cohorts.io, and you can use this to access the data we have available on their account. You will need to generate an API key for a user, and that user will then be able to make calls freely to the data we have available. We currently only offer the essentials to be queried, and keep certain types of data protected. You can check the API documentation for more information.

Can I set up surveys/questionnaires for my patients?

Yes! cohorts.io has a built-in survey system, which allows you to create surveys and questionnaires for your patients to fill in.

My patients are not very tech-savvy. Will they be able to use this?

Yes! cohorts.io is designed to be as clear and easy to use as possible, and we have designed it with the needs of patients in mind. We have also built in a messaging system, which allows you to send messages to your patients, and for them to reply to you. This is a great way to keep in touch with your patients, and to help them with any issues they may have.

My charity is undertaking clinical trials with a pharmaceutical company. Can we use this to manage those?

Yes! cohorts.io has a built-in clinical trial management system, which allows you to manage your clinical trials, and to track the progress of your patients. You can create phases, surveys, expenses, unique keys, notes, trial sites, partner organisations - everything you might need to manage a clinical trial.

Is the forum private?

Yes! The forum is only accessible to members of your organisation, and is not visible to the public. You can also make closed forums for specific groups of people within your registry.

How does this work for the carers/family members of patients?

Carers and family members can be added to the app as contacts, and can be given access to the app to manage the patient's data. They can also be given access to the forum, and can be given access to the messaging system. This super-simplifies the process of managing a patient's data, and allows you to keep in touch with their carers and family members, always adding the most current data.

How much is it?

You can view our plans on our home page. We offer a free tier for up to 20 patients, and paid tiers for up to 1000 patients. If you need more than 1000 patients, please contact us for a quote.

Who is mathergroup.io?

We are an organisation building tech and doing data science for progressives, charities and arts organisations. Our aim is to facilitate positive social change, and to provide innovative software to groups who would not normally have the capacity to access them. cohorts.io has grown from the building of a patient registry for rare disease charity Reverse Rett.

Is my data safe?

Data is stored behind all the proper protections dictated by European and US law. We have also built a password-protected login with two-factor authentication to extend the protection added to your data, with the ability to see your prior logins and detect suspicious behaviour. We take data security very seriously, securely encrypt the data we are able to, and always endeavour to put every protection we can in place to keep your data safe. We will never share your data with other organisations unless given permission for research purposes.

How can I transfer my patients to the app?

You can use the API that comes with cohorts.io, or you can manage this by file upload. We are on-hand to help you with any setup you require assistance with, and can handle the entire patient/contact-us upload for you should you require.

Is there a support team?

Yes - we aim to respond to any tickets raised with us in our support system within a maximum of 24 hours.

Is there a roadmap for new features?

We are focussing on the stable rollout of the current version of cohorts.io at this point - however in the future we will certainly expand on the features available both to staff and to patients/contact-uss using the app, including enhanced support for custom data from medical devices. Stay posted for further details soon!